Did anyone watch this on Channel 4 last night?
I often think that with the inexorable rise of "reality" and downright trash TV, that there are no longer TV programmes that are genuine and have the power to move. Watching this showed me different.
Jonny Kennedy's battle with a horrific genetic disorder was truly worthy television. Straight from Lord Reith's principles, this programme informed, educated and entertained. It was also emotionally draining and left me numb.
Sorry that this might not be in keeping with the usual banter in The Cafe, but I think the prgramme justified a comment.
RIP Jonny.
Join the most popular community of UK swingers now
Login
The Boy Whose Skin Fell Off
Warming the Bed
we managed to catch the second half of this: what a bloke he was, all the problems and pain he had suffered but still he managed to put on a cheery face, crack a joke or two and still want to help others.
It certainly puts our own livese and the problems we think we have into perspective. I just hope that he ended up where ever it was he imagined he was going to after he died.
It certainly puts our own livese and the problems we think we have into perspective. I just hope that he ended up where ever it was he imagined he was going to after he died.
I became involved for a while with someone with this condition until his death just short of the age of forty a few years ago. He became a valued and dear friend
Ian had the same qualities, guts, cheerfulness, irrepressibility, and the wit to take the pee out of anyone around him.
If you think you ever have problems think of someone with EB
Ian had the same qualities, guts, cheerfulness, irrepressibility, and the wit to take the pee out of anyone around him.
If you think you ever have problems think of someone with EB
Quote by vodka_babe22uk
I watched it he was so cheerful right till the end even tho he must have been in so much pain he still wanted to help others he was one brave man and thought are with his parents
His mother came across with a tremendous sense of dignity. It's a shame the same can't be said about his late father who all but rejected his son because of the condition.
If you're in the afterlife you told us you believed in Jonny, I hope you're having a good time of it there.
Quote by Mr Writer
I watched it he was so cheerful right till the end even tho he must have been in so much pain he still wanted to help others he was one brave man and thought are with his parents
His mother came across with a tremendous sense of dignity. It's a shame the same can't be said about his late father who all but rejected his son because of the condition.
If you're in the afterlife you told us you believed in Jonny, I hope you're having a good time of it there.
Dear Mr Writer;
Sadly did not see the program, but read much about it in the papers.
I can understand how his father 'all but rejected' the son. To try and come to terms with something like this tests the limits virtually to the end. I do speak from experience. My mother got measles when whe was pregnant with my younger brother. The result was a brother that was (and still is ) serverly mentally disabled (and now physically). My initial reaction as a youth was not what it should have been. Mind you I did get good at beating the proverbial shit out of older boys that took the piss out of him.
It took me until my late teens / early twenties for me to come to terms with his problems - and my elder brother educating me. All is well with the world and he lives a good life ( as long as you keep the bugger supplied with copious amounts of tea and ensure his dinner is on time
)That's my hijacking of this thread
Paul
Didn't see this programme but when I was living in France there was a programme with the same subject matter on the main thrust of this documentary was the way that this disease really puts a lot of life in perspective.
My daughter is quite ill though not on scales that have been mentioned here,but enough to affect our lives and sometimes things get very difficult for parents who can feel at times as if their lives, and their childs, have been robbed from do get on with things but it dosen't stop times when you feel like crying
My daughter is quite ill though not on scales that have been mentioned here,but enough to affect our lives and sometimes things get very difficult for parents who can feel at times as if their lives, and their childs, have been robbed from do get on with things but it dosen't stop times when you feel like crying
