You may remember me telling you about my Lumbar Puncture a couple of months ago. Well I had the results back in July and I was diagnosed with Multiple Sclerosis (Ms).
Now, I have been a lot quieter and not as active on here since the diagnosis. The thing is, I just cant seem to get my head around it.
Im 32 years old and feel like I have some massive dark cloud thats going to hang over me for the rest of my life. However long that may be :cry:
Im trying so hard to not let it affect my daily life, but its just too difficult.
The reason that im writing it here is because I would like to know if there is anyone else here who suffers the same condition or has experience at dealing with it ie family members/friends/at work.
I have joined the Ms Society forum but it I could do with someone on here that I could talk to now and again that understands the condition and what im going through. I feel so alone right now. Joe has been great but he doesnt fully understand the condition as he is not going through it himself.
If you would like to know a little more about the condition you can visit the website.
Louise xx
In Edit - I know its a blatant look at me post but in cyber space, this is home so feel comfortable writing it here, thats all.
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Ok Here Goes.........
Sex God
Oh Louise I really don't know what to say. I don't even know anyone with MS, apart from you, so please accept my sympathies.
:therethere:
:therethere: Louise hi, I do not know anyone that suffer from MS, sorry.
I can only wish you all the best and suggest to stay always positive, remember that your mind is the most powerful medicine there is, be strong!!!!
If ever in need of a chat or anything at all... rely on your friends... and family of course.
Keep us to date please and again all best wishes xxx
I can only wish you all the best and suggest to stay always positive, remember that your mind is the most powerful medicine there is, be strong!!!!
If ever in need of a chat or anything at all... rely on your friends... and family of course.
Keep us to date please and again all best wishes xxx
They used to be a member here who has Ms yes.....not sure if she's still around?? Not seen her here for a long time.
I used to work with a few people with MS a long time ago! Both lived life to the full and yes, still do! They seemed to find ways round life that suited them, had learnt what they could and couldn't do when it was at its worst.
Other than than, I'm no use sorry Louise...probably a lot to take in for you at times xxx
Wish you all the best
I used to work with a few people with MS a long time ago! Both lived life to the full and yes, still do! They seemed to find ways round life that suited them, had learnt what they could and couldn't do when it was at its worst.
Other than than, I'm no use sorry Louise...probably a lot to take in for you at times xxx
Wish you all the best
Sex God
Louise what can be said?
One of my dearest friends Have M.S and have had it for 30 years she has difficulties but i love her dearly as do my wife and children she remains every day importanr to us.
It's no good trying make you feel better i know, you have it you have no choice there is no reason. I also studied counselling with a lady with the same condition and though we discussed and talked about at length as she says no-body but those affected know! And that goes for a whole set of feelings that Joe is going through as well.
My advice is by proxy from my Friend - Please please please get along to your local M.S. society meetings in person find out and talk to the people dealing with it eceryday there is so much knowledge out there and so much that can assist you. Yes even with the head stuff
Good luck girl stay posting
One of my dearest friends Have M.S and have had it for 30 years she has difficulties but i love her dearly as do my wife and children she remains every day importanr to us.
It's no good trying make you feel better i know, you have it you have no choice there is no reason. I also studied counselling with a lady with the same condition and though we discussed and talked about at length as she says no-body but those affected know! And that goes for a whole set of feelings that Joe is going through as well.
My advice is by proxy from my Friend - Please please please get along to your local M.S. society meetings in person find out and talk to the people dealing with it eceryday there is so much knowledge out there and so much that can assist you. Yes even with the head stuff
Good luck girl stay posting
You already know my PM box is here for you.
However, Mr W has two close family members with MS- both of whom have had very different relationships with the illness. Secondly, my first "proper" boyfriend had it too- so I've spent many, many hours/weeks researching it.
Do not think that because we've got so much on our plates that we dont have room for your problems- you'll just need to squeeze in a little tighter.
However, Mr W has two close family members with MS- both of whom have had very different relationships with the illness. Secondly, my first "proper" boyfriend had it too- so I've spent many, many hours/weeks researching it.
Do not think that because we've got so much on our plates that we dont have room for your problems- you'll just need to squeeze in a little tighter.
Sex God
My mother has MS.
Pm incoming
Pm incoming
Sex God
pmd ya chick....
xx
xx
Sex God
Lousie I know someone with MS who has lived a full and active life for some years - they have their bad days but they still have a life.
And so will you, here's to hope eh?
And so will you, here's to hope eh?
Sex God
Hi Lousie
Many years ago I worked with a fantastic lady who was diagnosed with MS, we used to talk a lot about all kinds of stuff so, being totally ignorant or the condition I asked her, what are you supposed to do now
She said that she had been given advice on how to ‘manage’ the condition and was trying to act accordingly.
One of the first things we did was bully, quite literally, our employer to put her on a very broad based flexi time. (this was facilitated by contacting citizens advice to ascertain her employment rights, please bear in mind that an employment contract isn’t worth the paper its written on, you still have basic rights no matter what your contract says)
This helped her hugely by giving her the flexibility to work when she felt ok, or stay home when she did not. I recently met her in tha town, and when I asked her how she was after all those years she replied ‘Still managing the condition, but I’m a veteran at it now, so it’s a lot easier to deal with’
Can’t really say much more than that except to wish you all the very best
Many years ago I worked with a fantastic lady who was diagnosed with MS, we used to talk a lot about all kinds of stuff so, being totally ignorant or the condition I asked her, what are you supposed to do now
She said that she had been given advice on how to ‘manage’ the condition and was trying to act accordingly.
One of the first things we did was bully, quite literally, our employer to put her on a very broad based flexi time. (this was facilitated by contacting citizens advice to ascertain her employment rights, please bear in mind that an employment contract isn’t worth the paper its written on, you still have basic rights no matter what your contract says)
This helped her hugely by giving her the flexibility to work when she felt ok, or stay home when she did not. I recently met her in tha town, and when I asked her how she was after all those years she replied ‘Still managing the condition, but I’m a veteran at it now, so it’s a lot easier to deal with’
Can’t really say much more than that except to wish you all the very best
Quote by Pete_sw
Hi Lousie
Many years ago I worked with a fantastic lady who was diagnosed with MS, we used to talk a lot about all kinds of stuff so, being totally ignorant or the condition I asked her, what are you supposed to do now
She said that she had been given advice on how to ‘manage’ the condition and was trying to act accordingly.
One of the first things we did was bully, quite literally, our employer to put her on a very broad based flexi time. (this was facilitated by contacting citizens advice to ascertain her employment rights, please bear in mind that an employment contract isn’t worth the paper its written on, you still have basic rights no matter what your contract says)
This helped her hugely by giving her the flexibility to work when she felt ok, or stay home when she did not. I recently met her in tha town, and when I asked her how she was after all those years she replied ‘Still managing the condition, but I’m a veteran at it now, so it’s a lot easier to deal with’
Can’t really say much more than that except to wish you all the very best
I'm sure he didn't mean it! :roflmao:
Hi louise
Sometimes life is such a pain in the ass ain't it!! My step mum has ME and still managed to have twin boys!!!Honestly I think that as with everything in life Louise, take one day at a time! a stupid disease can't take away your love and enjoyment of life so enjoy every day. Sending you lots of pink fluffy girlie best wishes your way.
Luv 'n' hugs
shani
XXXXXXXX
Sometimes life is such a pain in the ass ain't it!! My step mum has ME and still managed to have twin boys!!!Honestly I think that as with everything in life Louise, take one day at a time! a stupid disease can't take away your love and enjoyment of life so enjoy every day. Sending you lots of pink fluffy girlie best wishes your way.
Luv 'n' hugs
shani
XXXXXXXX
Quote by Shani_cpl
Hi louise
Sometimes life is such a pain in the ass ain't it!! My step mum has ME and still managed to have twin boys!!!Honestly I think that as with everything in life Louise, take one day at a time! a stupid disease can't take away your love and enjoyment of life so enjoy every day. Sending you lots of pink fluffy girlie best wishes your way.
Luv 'n' hugs
shani
XXXXXXXX
All gratefully recieved, thank you.
I know what your saying about life throwing things at you. Although I seem to have had more than my fair share lately
We are trying to turn this into a positve thing. Weve finally got around to setting a date for our wedding, which will be in July next year :thrilled: as we feel its about time. Were also booking up our holiday for next year too. Just to have something to look forward to, something to take the edge off the pain and worry that we are going through right now.
Once again, thanks for your best wishes
louise xx
